Showing posts with label MDA fundraiser. Show all posts
Showing posts with label MDA fundraiser. Show all posts

Wednesday, April 10, 2013

Let’s Help Jake!!!

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This is Jake; he is a young man with DMD (Duchenne Muscular Dystrophy) who has a once-in-a-lifetime opportunity!  Jake has been invited to play for the USA Under 18's Power Soccer Team! This is an amazing opportunity that he simply cannot pass up! Jake is an amazing Power Soccer Player and it has changed his life for the better.  DMD is a progressive muscle wasting disease that robs boys of their ability to walk. In spite of having DMD, Jake always stays positive and has a great time living life. Since starting to play Power Soccer Jake has expressed that he wants to someday play for the United States Power Soccer Team…now he has a chance to play for the USA in Paris!  Yes, Paris the city in France.  Of course this will take money…that’s where you can help.

Danielle and I “met” online when she ran across a post I had done about our family fundraising for the MDA. You can read a few of the posts here and here.  I follow Danielle on Facebook and Instagram and feel like I know her and her family even though we have never met. 

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Here is what Danielle Bath, Jake’s mom, says about Jake and her family:   “I want to tell you a bit about our family.
We are a small family living in Sacramento, California. We consist of myself, aka mom & aka Danielle. Dad, Travis. Kids Jake, Emma and Colin. We are a tight family dedicated to each other, and dedicated to living our lives to the fullest. Having fun and making memories are a priority. Seems like atypical family right? In those aspects we are a typical family, except we have a little dark cloud that hangs over us. In October of 2007, we received devastating news that our 2 sons have a condition called Duchenne Muscular Dystrophy. It is a progressive muscle wasting disease. It takes away boys' ability to walk, and eventually takes their lives sooner than later. Beyond the physical, Duchenne also has the ability to take away a proper childhood. It also can take away hopes and dreams of the future. Need less to say, we have quite the void. A huge part of that void is filled with Power Soccer. Power Soccer gives Jake and our family the chance to get a reprieve from Duchenne, even if only for a few hours. For the last 12 months, we have made the 90 minute (each way) drive from Sacramento to Berkeley to take Jake to practice as a family on Saturdays. With his disability he may have been robbed of the feeling of team spirit, robbed of learning a sport, and working hard at improving his sport. Power Soccer has changed all of that. Jake is part of an amazing team, with a wonderful group of people. Power Soccer is the only place where he does not have to rely on others to do something for him, he is on his own out there on the court making his own decisions. It truly is amazing to watch.”

DMD is something that greatly affects my family as well as my youngest sister has two boys, Beau and Gabe, who also have DMD.  My family has been involved in fundraising for the Muscular Dystrophy for several years in the past.   Life expectancy is way too short…you can read more about DMD here

I challenge everyone who reads this to help this family make Jake’s dream come true!

Click on the gofundme box below to help out!

Please consider sharing this on any social networking that you use!  Have a great week!

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Thursday, October 18, 2012

The MDA Fundraiser

Every year since 2005 my family has hosted a fundraiser for the Muscular Dystrophy Association.  I have two nephews, Beau and Gabe who have Duchene Muscular Dystrophy…it’s something we can do to help others with all different types of muscular dystrophies.  This year we didn’t actually host the fundraiser, but we did attend in full force.  It was held at the Southern Illinois Miners stadium…so we had plenty of room to spread out!
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Mom and my son sporting their signs!
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There was some entertainment, some silent auction stuff to bid on and a lot of visiting to do.
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Oh, yeah, then there was the walk!  We marched around the bases, some more than others!
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And it was a beautiful day too even though it had rained buckets the night before on my way down.
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These cloggers were great!  Very enthusiastic…
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Each family or group had their own t shirts made to show whose name they were donating.
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Laney found a silent auction she really wanted…she talked grandma into bidding for her…seems like she left her own checkbook at home.
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Laney had to be pulled away from the table because she would not allow anyone else to even look at the basket.
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Well in the end she got her basket and all was well!
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Audrey was kinda “go with the flow” girl as usual, at the end though she got really sleepy.
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I’m sure she was asleep before they got her buckled in…
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The college kids were comparing classes.  Hannah in the middle goes to Columbia College on a golf scholarship…she is really good!
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This was one of three auctions I bid on…and won!  It’s an alternative ladybug purse! I love it!
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Sunday, October 2, 2011

MDA Fundraiser Fun

Sorry, this is going to be a long post with lots of pictures! I love my pictures. This is the 7th annual MDA Fundraiser hosted by my family in Galatia, IL. We have raised over a quarter million dollars since the beginning to raise money for research and care for folks with muscular dystrophies.
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These two guys are the reason my family does this every year…Beau on the left and Gabe on the right! They both have Duchenne Muscular Dystrophy. We hope and pray for a cure to help these guys! We have a live auction, a silent auction and a team walk/ride to raise money.
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We had rain this year, lots of it, so we set up differently and everything was fine, just a bit muddy, but the sun did try to come out several times. You couldn’t keep the people away, they came out as usual!
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My SIL Chasidy…
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and my mom…
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The walk part getting ready to happen…lots of walkers/riders and the local village fire truck to lead them off. That’s the cool thing about this event is how much the little village/town puts into the mix!
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The handmade pumpkin basket….
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Pint jar full of felted wool acorns…made by me!
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Kid fun basket…
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Snuggly baby blanket with handmade taggie! I made this from a soft chenille and it turned out really cute!
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Miss Laney has the best seat in the house!
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Fun fall basket!
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My aunt Marge made this bandana quilt and it went really high!
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I snagged this basket…see the wool ball garland! Love it!
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My niece made this lovely birds nest necklace.
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I wanted these soooo bad, but I was outbid. My sis Sarah made them, just little owl zip pouches.
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I also scored this Sak purse…love it!
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A Thirty One basket…it was very popular!
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And who doesn’t love girl scout cookies?
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One of the classes at the school made this crayon canvas piece of art. I had seen these on blogs, but never saw one in person. It looked really cool!
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My sister Jenny, Beau and Gabe’s momma! And that is another great thing about this fundraiser…I get to see all sorts of family!
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Everything in this basket was made from duct tape—those flowers were really creative!
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The teeter totters were very popular with the young ones…
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Look mom, only one hand! Audrey is fearless!
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And cute little great nieces and nephew running around made it all fun too!